Let me start out with the fact that I'm going to be just fine. Promise. The cancer they found is so small it can't be found on a CT or Pet Scan - just a few cancerous cells discovered during a biopsy for a totally unrelated health concern. Three to four weeks of radiation and it should all be gone. I won't lose my hair, I don't have to think about freezing eggs if I plan to give birth one day and I can still work. The only side effects will probably be some nausea toward the end, I might be a bit more tired and I'll have a small tattoo where X marks the spot.
With that out of the way I will start from the beginning. It was a fluke they even found it. I had been getting food stuck in my throat for a few years and it was getting worse so my doctor recommended going in for an endoscopy. When they were checking that out they grabbed some cells and sent them to the lab (I'm guessing the idea is that they were already there and I was already drugged). The initial problem was solved by stretching my esophagus (and did it ever! All better!), but when the biopsy results came back they had found
MALT lymphoma. For most people it is caused by helicobacter pylori bacteria and quickly cleared up using antibiotics within a couple of weeks. But since the h. pylori bacteria was not in the biopsy cells they wanted to do another blood test to make sure that was the cause.
Four days later I hadn't heard anything from either doctor, so I called the gastroenterologist's office and was told that he was on vacation and his admin had no idea why I hadn't called my GP's office (apparently I was the stupidest patient ever). Frustrated I called my GP's office and her admin also had no idea what was going on and was equally annoyed. Her repeated interruptions of me trying to read the letter the gastroenterologist had sent me knocked me right over the edge. I told her she needed to shut up and listen to me. I also told her that when a dr. gives a diagnosis that involves the term "lymphoma" I expect someone at either office to know exactly what is going on. She was much nicer after that and told me I would soon hear from a nurse that would be better equipped to give me answers. Thankfully the nurse was much nicer and he arranged the blood test the next day.
No h. pylori bacteria in my system scared the living crap out of me. Not my favorite place. It's dark and paralyzed with fear and makes you cry every morning when you drive into work or talk to a medical professional. I had no idea what would make me burst into tears, I just hoped I could find someplace to be by myself when it happened. I could not find anywhere on the INTERNET that talked about MALT Lymphoma that didn't associate it to h. pylori. All the things I didn't know and couldn't find out made me into a crazy person.
Meeting with the oncologist alleviated a lot of my fears. He reassured me that even if it had spread beyond my stomach it was a very treatable cancer. I would live. Very reassuring. He did recommend a crapload of tests to see if it had spread. In addition to the 6 vials of blood he took (and then I went to a happy hour and drank 2 beers - woo hoo!) that day, I was scheduled for a
CT/
PET scan and a
bone marrow biopsy (there is also a
creepy youtube video of the bone marrow biopsy). I have learned valuable lessons from both tests: for the next CT scan I am only allowed to sing 99 bottles of beer on the wall instead of imagining how much cancer the technician is seeing and I will totally get the pre-drugs if I ever have to get another bone marrow biopsy. The results of all the tests was that I am cancer free except for those few cells in my stomach. I will need radiation to get rid of it, but after that I should be fine. I scheduled an impromptu happy hour with all the people who knew about it and I attempted to drink away all the anxiety I had experienced over the last month.
Some of you might be wondering "what the crap?!? I just saw you and you didn't say anything about this." I tried not to tell anyone because I thought until I knew what was going on I would just be this hysterical person without answers. It turns out when I would have a bad day I needed to talk about and get reassurance so I would tell whomever I ran into or happened to call my house. There were days I didn't want or need to talk about it at all. And even though talking really helped, it is emotionally exhausting to tell someone for the first time. Which is why I posted it on the INTERNET. It's easier for me. I'm hoping it's hard to hold a grudge against someone with cancer. The people I did tell were amazing and supportive. They went to tests with me and reassured me that it would be ok and told jokes when I needed to laugh. Accepting this help took some getting used to. I am still working on my ability to say "thank you that would be lovely" rather than "I can do it alone." I didn't realize how bad I am at taking care of myself emotionally until all this happened. I'm working on it.
In addition my inappropriate sense of humor is in full force. I have decided to use cancer to my advantage mostly because it's not hanging around for very long. I may cut in line, eat the last bite of dessert and drink all your liquor. It's really hard to hold it against someone when they have cancer, right? When you shake your fist in the air I will assume it's because you think cancer is an asshole and not because I am :)